• 10 April 2021,
Come Say Hi, Byron Bay Australia

Come Say Hi is an awareness campaign created by Eli Meyer and his sister Lily. It’s a simple message with a lot of heart: Come Say Hi. Born with the genetic skin disease Epidermolysis Bullosa, young Eli Meyer gets a lot of stares when he goes out in public. His family’s solution? A campaign they call Come Say Hi. When you see someone who looks different to you, there’s just one thing to do: come say Hi. EB Research Partnership (Australia) is delighted to bring Eli’s campaign downunder to beautiful Byron Bay Australia to raise funds for a cure for EB.

Held at the Beach Hotel, this event has a $25 entry fee, there will be fundraising activities with merchandise available and you will be entertained by popular Melbourne band the Screamin’ Eagles.

Come Say Hi in Byron Bay!

 

Event Info
  • 01 May 2021,
Cotton Ball
Event Info
  • 05 - 07 March 2021,
Brighter Days

Brighter Days is a three day family friendly festival held annually in the Victorian picturesque township of Bright, on the Labour Day Weekend in March. It all started when a group of like minded friends whose interests include bikes, cars and music formed a committee to organise the inaugural “Brighter Days” event to raise funds for the EB Research Partnership (Australia), Debra Australia and the Cooper Trewin Memorial (SUDC) Research Fund.

click for more information on Brighter Days
  • 21 May 2021,
MayDay 2021

The MayDay Charity Event is an initiative by The Corcous Club, who make a difference within the community. The event is an annual sports-themed charity fundraising lunch held in Melbourne during the month of May. The purpose of the event is to not only raise funds, but to also raise the profile and create awareness for the chosen charity. This year, MayDay is supporting EB Research Partnership (Australia), raising funds to invest in science & medical research that will lead to products and therapies for treating and ultimately curing Epidermolysis Bullosa (EB).

Event Info
Sunday Sounds

Sunday Sounds is a casual fundraising event  which can be held on any given Sunday throughout the year at the East Brunswick Hotel.

Event Info
  • 21 August 2021,
Star Ball

Star Ball is a spectacular annual event held in August at Melbourne’s beautiful Plaza Ballroom. This is an event organised by the wonderful Star Ball committee and raises funds for the Starlight Children’s Foundation and EB Research Partnership Australia.

  • 22 October 2021,
Cure EB Ladies Lunch

Cure EB Ladies Lunch is a very popular event held in the month of October for International EB Awareness Week (25th– 31stOctober) and hosted by Ambassador Jonathan Brown.

Community Fundraising Events

Check out these wonderful fundraising events run by caring people, helping EB Research Partnership (Australia) raise vital funds for Research towards a cure for Epidermolysis Bullosa! Help Us #HealEB

Community Events