RECENT PRESS

  • April 7, 2020
​LETTER FROM CEO IN RESPONSE TO COVID-19 PANDEMIC

EBRP CEO, Michael Hund, details our response to the COVID-19 pandemic and reaffirms our commitment to discovering treatments and cures for EB. Read the full statement by clicking the button below.

  • March 27, 2020
​WELLESLEY RESIDENTS SUPPORT FUND-RAISER FOR ‘BUTTERFLY CHILDREN’

​“When we asked Emily very early on how we could help, she said, ‘you can help me by finding a cure for my daughter,’” says Kristan Fletcher Khtikian to the The Boston Globe. In response, 10 lifelong friends of EBRP Board Member and mother to Elodie, Emily Kubik, founded the Plunge for Elodie in 2018. Over the past 3 years, the #PlungeForElodie has raised over $600,000.

  • February 29, 2020
​EB RESEARCH PARTNERSHIP ANNOUNCES THE 3RD ANNUAL PLUNGE FOR ELODIE FUNDRAISER MARCH 7 & 8, 2020, WITH FIVE SAME-WEEKEND PLUNGES AROUND THE GLOBE

In honor of Rare Disease Day, EB Research Partnership announced the 3rd annual Plunge For Elodie will be held on March 7 & 8 and has become an international event with five plunge locations. Orginally a small hometown fundraiser, the goal this year is $300,000, all of which benefits EB Research Partnership. Click the button below to read the full press release.