Resources

Understanding EB

Text-based graphic with the words "one day every day" split diagonally. A small logo resembling a butterfly is at the top right. Below, the text reads "Pursuing a Cure for Epidermolysis Bullosa (EB)."

One Day Every Day

Illustration with the text 'A Visual Guide to Understanding Epidermolysis Bullosa' next to a DNA strand icon on a yellow background.

A Visual Guide to Understanding EB

For EB Families

Smiling baby with dark hair wearing a blue outfit, with text above that reads "Epidermolysis Bullosa: Products and Resources for the Care of a Newborn with EB" from Adapt Health patient care solutions.

Caring for Newborns with EB

Cover of "Best Practice Guidelines: Skin and Wound Care in Epidermolysis Bullosa," featuring a blue background and floral design, labeled "International Consensus."

Best Practice Guidelines - Skin and wound care

Collage with children and lab images, text: "Our goal is to cure EB by 2030 and pioneer a path for the 400M+ affected by a rare disease."

Fundraising Assets

Image with a baby and text regarding a skin disorder, contact info for EB Research Partnership, and a quote by Eddie Vedder about the seriousness of the skin disorder affecting internal organs. The image includes a logo and the phrase 'Together, we will #healEB.'

EBRP Impact Booklet

EBRP Printable Tri-fold Brochure

Learn More

FUNDED PROJECTS
FUNDED PROJECTS
LIFE WITH EB
LIFE WITH EB
HOST A FUNDRAISER
HOST A FUNDRAISER
WHAT IS EB?
WHAT IS EB?