News Simone Flanagan 7/15/26 Simone Flanagan 7/15/26 Adelaide to develop world-first phage therapy for EB Read More Simone Flanagan 7/13/26 Simone Flanagan 7/13/26 Skin like a butterfly, heart of a giant Read More Simone Flanagan 4/27/26 Simone Flanagan 4/27/26 An Australian first - and what comes next Read More Jade Ogden 4/13/26 Jade Ogden 4/13/26 April Newsletter Read More Jade Ogden 2/26/26 Jade Ogden 2/26/26 rare Disease Day- EB is everyday. A global Movement for eB Read More Jade Ogden 2/9/26 Jade Ogden 2/9/26 Matter Of Time Film- A Global Movement for EB Read More Dan McKernan 5/1/25 Dan McKernan 5/1/25 FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community. Read More Research Dan McKernan 3/26/25 Research Dan McKernan 3/26/25 EMA Recommends Approval of Vyjuvek Read More
Simone Flanagan 7/15/26 Simone Flanagan 7/15/26 Adelaide to develop world-first phage therapy for EB Read More
Jade Ogden 2/26/26 Jade Ogden 2/26/26 rare Disease Day- EB is everyday. A global Movement for eB Read More
Dan McKernan 5/1/25 Dan McKernan 5/1/25 FDA approval of Abeona Therapeutics' ZEVASKYN accelerates momentum and expands treatment options for the EB community. Read More
Research Dan McKernan 3/26/25 Research Dan McKernan 3/26/25 EMA Recommends Approval of Vyjuvek Read More
